New Site Hopes to Aggregate Data on Rare Genetic Conditions

A new Web site hopes to aggregate information on people with very rare genetic disorders. “The site, called MyGene2, went live in March and now has more than 100 profiles posted by families, researchers and clinicians — with more added daily. It’s one of the first advanced, searchable platforms that makes it easy to share clinical and scientific information about genetic mutations that may underlie unknown conditions.”