Nature: Europe’s Roma people are vulnerable to poor practice in genetics

Nature: Europe’s Roma people are vulnerable to poor practice in genetics. “For many samples, either there is no record of consent being obtained from individuals whose DNA was collected, or the procedures used to obtain consent were inadequate. This applies to numerous studies involving Indigenous communities, including Australia’s Aboriginal and Torres Strait Islander people, Native American communities in the United States and the San people in southern Africa. Moreover, people often have little or no say in how their DNA will be used, and rarely benefit from the studies. Now, our analysis of several hundred publications and five databases points to multiple issues with the handling and interpretation of DNA data from Roma people. The Roma are the largest minority group in Europe.”

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