YLE: Finnish researchers to create DNA database of 500,000 people for disease studies

YLE: Finnish researchers to create DNA database of 500,000 people for disease studies. “Researchers at the Finnish publicly and privately-funded research project FinnGen say they want to broadly expand the number of DNA samples of Finnish residents in order to find new methods of fighting diseases.”

University of Florida: Deep brain stimulation shows promise for select Tourette patients in new UF-led worldwide registry

University of Florida: Deep brain stimulation shows promise for select Tourette patients in new UF-led worldwide registry. “University of Florida neuroscientists are leading a multinational effort to track outcomes for patients with Tourette syndrome who undergo deep brain stimulation surgery, an established treatment for other movement disorders such as Parkinson’s disease that’s now being tested as a potential means to decrease the motor and vocal tics of Tourette syndrome in certain patients. Data collected thus far in a registry of a small international group of patients with uncontrolled Tourette syndrome show a link between deep brain stimulation, or DBS, and some symptom improvement as well as some adverse events, the neuroscientists report in today’s issue of JAMA Neurology.”

Edmonton Journal: Online database aims to improve participation in Alberta clinical trials

Edmonton Journal: Online database aims to improve participation in Alberta clinical trials. “Clinical trials taking place across the province on everything from arthritis to melanoma to urinary incontinence are the focus of a new online database that aims to increase Albertans’ participation in medical research.”

To Russia With Love: UVA Research Team Creates One-of-a-kind Database (UVA Today)

UVA Today: To Russia With Love: UVA Research Team Creates One-of-a-kind Database. “With the U.S. State Department seeking its assistance, the pressure was on a team of University of Virginia researchers to complete a one-of-a-kind project that could help save lives – and potentially improve relations between the U.S. and Russia. After combing through more than 8,000 scientific articles, the team – led by Dr. Scott Heysell, an associate professor of medicine for infectious diseases and international health – has put the finishing touches on what they believe is the only geo-located database of HIV research conducted in Russia and former Soviet Union countries.” I could not find a link to the database in the article, so I e-mailed one of the team members, Dr. Rebecca Dillingham. She was very kind and sent me the link:
https://uvalibrary.maps.arcgis.com/apps/Cascade/index.html?appid=48b5afa8655146298c4d8323fe14dbe8 .

STAT: Deal struck to mine cancer patient database for new treatment insights

STAT: Deal struck to mine cancer patient database for new treatment insights . “he plan took shape over a decade: A prominent society of cancer doctors would create a massive patient database and use it to discover the most effective treatments for specific cancers. The first part of the effort worked — the American Society of Clinical Oncology secured data from more than 100 oncology practices nationwide. But it has since struggled to reconcile myriad conflicts in language and formatting, leaving crucial insights buried in the records. On Thursday, the 40,000-member organization unveiled an unusual arrangement to solve that problem by partnering with two private companies that will pay for the rights to analyze the database, known as CancerLinQ, and deliver clinical information to doctors nationwide.”

Phys.org: Tracking planned experiments online could spot ways to improve animal testing

Phys.org: Tracking planned experiments online could spot ways to improve animal testing . “An online database of study summaries could be systematically evaluated to uncover new information about animal testing, including potential targets for efforts to minimize harm to lab animals. A demonstration of this approach is publishing 14 December in the open access journal PLOS Biology.”