Salon: How 68,000 COVID-19 survivors created a world-class patient resource group in just four months

Salon: How 68,000 COVID-19 survivors created a world-class patient resource group in just four months. “Diana Berrent was one of the first people in her hometown of Port Washington, New York, to get COVID-19. Back then, in early March 2020, only immunocompromised and seniors were believed to be high-risk; hence, as a 46-year-old yoga practitioner and runner, Berrent was ‘shocked’ when she woke up with a 103-degree fever and respiratory infection — symptoms that strongly suggested she had coronavirus, which was later confirmed by a test.”

EurekAlert: Meet the superusers who hold together health social media

EurekAlert: Meet the superusers who hold together health social media. “Online health communities help people to self-manage certain aspects of their long-term conditions better through harnessing support and knowledge held by other users in the network. They are mostly run on a voluntary basis by their users. Superusers (the 1 per cent highly active users) play a central role in these communities as a result of the characteristics of their online activity and their constant engagement.”

The Next Web: Am I queer enough? How to find your Pride online

The Next Web: Am I queer enough? How to find your Pride online. “Before June, I was a technology journalist. Now I’m a queer journo. It’s not an official distinction. I’m not getting paid for it, but I sure am being taxed. My time is taxed when I’m forced to choose between using my voice to advance the struggle for queer equality or focusing on personal endeavors like my career and family. And my time is also taxed by bigots whether I ignore, engage, or attempt to educate them. It’s been 14 days, and if it weren’t for Twitter, Reddit, Facebook, Instagram, and thousands of online reporters, bloggers, and activists I’d be lost already. I’m not even sure if I’m queer enough for Pride.”

Phys .org: High five! It’s possible to create proximity online

Phys .org: High five! It’s possible to create proximity online . “Touching a beloved family member, or even making eye contact, is impossible online. Still, it’s possible to feel close to them. Anna Martín Bylund and Linnéa Stenliden have studied the social and emotional challenges that geographical distance can create among family members who are spread out in different countries, and how longing is expressed in video calls. Their study has been published in the Journal of Multilingual and Multicultural Development.”

AdWeek: Social Media Is Providing a Sense of Community for Those Targeted by Racist Attacks During the Pandemic

AdWeek: Social Media Is Providing a Sense of Community for Those Targeted by Racist Attacks During the Pandemic. “Since the Covid-19 pandemic began, I’ve felt fearful of a possible confrontation due to my ethnicity, to the point of holding in a cough to divert unwanted attention. And I am sure there are many others who share similar or worse experiences. With more incidents being shared online, Asian Americans are using social media more than ever to organize and fight against bigotry.”

PLOS Blogs: Tips on Using Science Twitter During COVID-19

PLOS Blogs: Tips on Using Science Twitter During COVID-19. “In the middle of the COVID-19 pandemic, many scientists have taken to social media platforms, particularly Twitter. Social media can facilitate research collaboration, generate ideas, clarify misinformation, and further understanding. Here are some of the ways that science is happening on Twitter, including strategies to extend the reach of ideas or ask others for help. While most of these examples address the urgent pandemic, they will work in ordinary times as well.”

The Citizen: A Facebook group that started in Harrisonburg connects people across the globe through dance

The Citizen: The Citizen: A Facebook group that started in Harrisonburg connects people across the globe through dance. “With countries banning mass gatherings and governments and health organizations are urging people to practice social distance to stop the spread of COVID-19, people are having to get creative to make contact with each other and unite amid being quarantined. After Virginia’s governor declared a state of emergency, one Harrisonburg resident started Dancing Resilience as a virtual dancing community to do just that. The aim of building this online community is to make people feel connected, but in another form, said Katie Mansfield, Dancing Resilience’s founder.”

Decaturish: Dear Decaturish – In response to coronavirus, resources for addicts move online

Decaturish: Dear Decaturish – In response to coronavirus, resources for addicts move online. “In the wake of the COVID-19 crisis, something amazing is happening that I think most people don’t realize. It’s historical but if you’re not a part of the 12-Step community you might not even know that it’s happening. For the first time in its entire history, an entire subsect of American culture is going digital. Millions of people, who suffer from alcoholism and addiction, are taking their meetings online. Over a dozen meetings in Decatur alone will now be streamed over the internet.”

Medium: How to Handle Toxic People as an Online Community Manager

Medium: How to Handle Toxic People as an Online Community Manager. “Internet reality plays by its own rules and you’re obliged to know them and understand what to do when dealing with people online. I have been working as a community support manager for more than two years now. It’s a massive period of time measured by the amount of communication I initiate every single day, sending cooperation offers to designers, replying to comments and reviews, creating social media posts and updates.”

Medium: How Not to Be an Asshole on the Internet

Medium, and I apologize for the swearing: How Not to Be an Asshole on the Internet. “A 2017 study seemed to prove what those of us familiar with online debates have feared for years: People we disagree with seem less human to us when we read their views than when we hear them spoken aloud. Results from a separate 2017 study might help explain why. One: Voices convey emotion, both through the content of what a person says and in how they say it. And two: Intimacy can change everything in these contexts. Seeing someone’s face all the time creates a kind of expertise that allows a person to understand another’s mental state just by looking at them. There’s evidence to suggest that it’s also possible to have this transformation on social media, where we are increasingly conducting our lives.”

Search Engine Journal: Yahoo Extends Deadline for Deletion of Yahoo Groups Data

Search Engine Journal: Yahoo Extends Deadline for Deletion of Yahoo Groups Data. “Yahoo is extending the date that it plans to delete all Yahoo Groups data, which was originally scheduled to happen this week. It was announced in October that all content on Yahoo Groups would be deleted by December 14. Now, Yahoo says it will not delete Groups data until January 31, 2020.”

Ars Technica: Verizon reportedly blocks archivists from Yahoo Groups days before deletion

Ars Technica: Verizon reportedly blocks archivists from Yahoo Groups days before deletion. “An ad-hoc group scrambling to archive as much content as possible from Yahoo Groups ahead of the site’s final demise next week is running into trouble as more than a hundred volunteer archivists say Yahoo’s parent company, Verizon, has banned their accounts.” This is a big steaming pile of you know.

A Good Place: The Only Good Comments Section On The Internet (The Outline)

The Outline: A Good Place: The Only Good Comments Section On The Internet. “No matter where the comments live these days, it’s almost impossible to find a comments section where the unsolicited opinions that live there are actually positive, let alone helpful. Unless we’re talking about the comments on NYT Cooking, a digital collection of recipes from The New York Times.”

New York Times: Why Spy on Twitter? For Saudi Arabia, It’s the Town Square

New York Times: Why Spy on Twitter? For Saudi Arabia, It’s the Town Square. “Saudi Arabia provides no public spaces where citizens can gather to discuss news and politics. And the kingdom’s news media are state-owned or controlled, limiting the range of perspectives they carry. But many Saudi citizens have multiple cellphones and fast internet, which have led them to use Twitter to engage both with the world and with their fellow citizens. That has given the kingdom one of the world’s largest Twitterspheres.”

Undark: To Tackle Drug Use, Researchers and People With Addiction Alike Turn to Online Forums

Undark: To Tackle Drug Use, Researchers and People With Addiction Alike Turn to Online Forums. “As the opioid epidemic worsens, claiming about 130 lives a day in 2018 in the United States alone, a cadre of researchers is looking for solutions to addiction and overdoses in the sprawl of drug forums. The researchers say that drug forums on the dark net — a catch-all for internet hubs that are often encrypted or unavailable through regular search engines — along with more mainstream counterparts like Bluelight and drug-related threads on the website Reddit, might be a medical or research tool in their own right.”